Data Requests

Data Requests

Approved

TitleRequestor TypeRelease TypeApproval Date
Onpoint Collective Impact Behavioral Health StudyIndustry/Non-profitDeidentified Dataset9/23/2024
Claims Utilization Research of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the Georgia All-Payer Claims Database (CURe-ME)AcademicLimited Dataset8/26/2024
Trends in phototherapy access in Georgia: a focus on cutaneous T-cell lymphomaAcademicDeidentified Dataset2/24/2025
Postpartum care utilization for teen births in GeorgiaAcademicLimited Dataset12/2/2024
What is emergent enough? Quantifying life-threatening pregnancy complicationsAcademicLimited Dataset2/24/2025
Assessing the Impact of the GA Senate Bill 46 on Syphilis Testing Patterns Among Pregnant Women in GAState AgencyLimited Dataset1/27/2025
Hospice Cost-Sharing in the Affordable Care Act Individual MarketplaceAcademicLimited Dataset4/28/2025
ARCHER: Advancing Access and Affordability of Robust Care and Health Equity in Rural GeorgiaAcademicCustom Report3/24/2025
Maternal Mental Health Screening UtilizationIndustry/Non-profitCustom Report3/25/2025
Understanding Medicaid Expansion Alternatives and Maximizing Access to Care for Low-Income Working PeopleAcademicLimited Dataset6/23/2025
UCC2PCP: An Evaluation of Urgent Care Center-Delivered Primary CareAcademicLimited Dataset6/23/2025
Understanding Adverse Outcomes after Interhospital Transfer in GeorgiaAcademicLimited Dataset8/25/2025

Not Approved

Project PurposeRequestor TypeYear
Comparing health care payment rates for one health insurer versus the commercial marketHealth Insurer2024
Evaluating impacts of machine learning deployment in hospital electronic medical records systems on patient health outcomes and health disparityAcademic2025
Using machine learning to detect fraud, waste, and abuse from claims dataIndustry2025

Withdrawn

Project PurposeRequestor TypeYear
Examining extracorporeal membrane oxygenation (ECMO) usage patterns and patient outcomesAcademic2024
Analyze county wise health care cost in GeorgiaIndustry2025
Assess barriers in healthcare access, time to diagnosis, and treatment utilization for inflammatory bowel diseaseAcademic2025
Using deep learning to understand insurance pricing strategiesAcademic2025
Identifying reimbursement disparities, cost trends, and access barriers for mental health and substance abuse treatmentHealthcare Provider2025

ARCHER: Advancing Access and Affordability of Robust Care and Health Equity in Rural Georgia

ARCHER: Advancing Access and Affordability of Robust Care and Health Equity in Rural Georgia

Project TitleARCHER: Advancing Access and Affordability of Robust Care and Health Equity in Rural Georgia
Project PurposeBuild and evaluate an advanced decision support tool to address the lack of accessible and affordable healthcare in rural areas.
OrganizationGeorgia Tech Research Institute
Requestor TypeAcademic
Principal InvestigatorMicaela Siraj
Release TypeCustom Report
Approval Date3/24/2025

Assessing the Impact of the GA Senate Bill 46 on Syphilis Testing Patterns Among Pregnant Women in GA

Assessing the Impact of the GA Senate Bill 46 on Syphilis Testing Patterns Among Pregnant Women in GA

Project TitleAssessing the Impact of the GA Senate Bill 46 on Syphilis Testing Patterns Among Pregnant Women in GA
Project PurposeThis study aims to analyze maternal syphilis testing patterns in Georgia, quantify the impact of GA Senate Bill 46 (2023) on overall and key time-point specific maternal syphilis testing rates, and examine potential variations in these trends across different population groups.
OrganizationGeorgia Department of Public Health, Sexually Transmitted Disease (STD) Program
Requestor TypeState Agency
Principal InvestigatorUdodirim N. Onwubiko, MD PhD
Release TypeLimited Dataset
Approval Date1/27/2025

Claims Utilization Research of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the Georgia All-Payer Claims Database (CURe-ME)

Claims Utilization Research of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the Georgia All-Payer Claims Database (CURe-ME)

Project TitleClaims Utilization Research of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the Georgia All-Payer Claims Database (CURe-ME)
Project PurposeAnalysis of myalgic encephalomyelitis and chronic fatigue syndrome post-Covid infection
OrganizationGeorgia Tech Research Institute
Requestor TypeAcademic
Principal InvestigatorCaleb Hightower
Release TypeLimited Dataset
Approval Date8/26/2024

Hospice Cost-Sharing in the Affordable Care Act Individual Marketplace

Hospice Cost-Sharing in the Affordable Care Act Individual Marketplace

Project TitleHospice Cost-Sharing in the Affordable Care Act Individual Marketplace
Project PurposeCategorize the prevalence, distribution and spending of ACA enrollees who use hospice services while insured by individual market ACA health insurance.
OrganizationEmory University
Requestor TypeAcademic
Principal InvestigatorSarah H. Cross, PhD
Release TypeLimited Dataset
Approval Date4/28/2025

Maternal Mental Health Screening Utilization

Maternal Mental Health Screening Utilization

Project TitleMaternal Mental Health Screening Utilization
Project PurposeTo assess the utilization of maternal mental health screenings in Georgia, understand referral patterns, and evaluate access to maternal mental health care.
OrganizationHealthy Mothers, Healthy Babies Coalition of Georgia
Requestor TypeIndustry/Non-Profit
Principal InvestigatorMIriam Goodfriend
Release TypeCustom Report
Approval Date3/25/2025

Onpoint Collective Impact Behavioral Health Study

Postpartum care utilization for teen births in Georgia

Postpartum care utilization for teen births in Georgia

Project TitlePostpartum care utilization for teen births in Georgia
Project PurposeTo assess existing knowledge gaps in postpartum care utilization among teen mothers and to compare care engagement between those with and without cardiometabolic risk factors.
OrganizationEmory University
Requestor TypeAcademic
Principal InvestigatorAnna Newton-Levinson, PhD
Release TypeLimited Dataset
Approval Date12/2/2024

Trends in phototherapy access in Georgia: a focus on cutaneous T-cell lymphoma

Trends in phototherapy access in Georgia: a focus on cutaneous T-cell lymphoma

Project TitleTrends in phototherapy access in Georgia: a focus on cutaneous T-cell lymphoma
Project PurposeQuantify phototherapy services at the provider level and map this change over time
OrganizationEmory Winship Cancer Center
Requestor TypeAcademic
Principal InvestigatorZachary Wolner, MD
Release TypeDeidentified Dataset
Approval Date2/24/2025

UCC2PCP: An Evaluation of Urgent Care Center-Delivered Primary Care

UCC2PCP: An Evaluation of Urgent Care Center-Delivered Primary Care

Project TitleUCC2PCP: An Evaluation of Urgent Care Center-Delivered Primary Care
Project PurposeTo develop an understanding of how Urgent Care Centers are used for primary care and whether that leads to high-value care and/or disparities.
OrganizationEmory University
Requestor TypeAcademic
Principal InvestigatorSara Turbow, MD
Release TypeLimited Dataset
Approval Date6/23/2025

Understanding Adverse Outcomes after Interhospital Transfer in Georgia

Understanding Adverse Outcomes after Interhospital Transfer in Georgia

Project TitleUnderstanding Adverse Outcomes after Interhospital Transfer in Georgia
Project PurposeTo gain understanding of hospital and regional factors leading to variation in interhospital transfer rates between Georgia hospitals and determine the incidence of and risk factors for adverse outcomes after interhospital transfer among adults in the state.
OrganizationEmory University
Requestor TypeAcademic
Principal InvestigatorRachel Hadler, MD
Release TypeLimited Dataset
Approval Date8/25/2025

Understanding Medicaid Expansion Alternatives and Maximizing Access to Care for Low-Income Working People

Understanding Medicaid Expansion Alternatives and Maximizing Access to Care for Low-Income Working People

Project TitleUnderstanding Medicaid Expansion Alternatives and Maximizing Access to Care for Low-Income Working People
Project PurposeTo compare the characteristics and patterns of healthcare use between low-income Georgians who enrolled in Pathways to Coverage (PTC) and people who were potentially eligible but not enrolled. 
OrganizationAugusta University College of Nursing
Requestor TypeAcademic
Principal InvestigatorBlake McGee, PhD
Release TypeLimited Dataset
Approval Date6/23/2025

What is emergent enough? Quantifying life-threatening pregnancy complications

What is emergent enough? Quantifying life-threatening pregnancy complications

Project TitleWhat is emergent enough? Quantifying life-threatening pregnancy complications
Project PurposeThe project aims to quantify the prevalence of life-threatening pregnancy complications and chronic illnesses in reproductive-aged individuals, evaluate maternal and pregnancy outcomes, assess access to reproductive healthcare, and analyze the use of high-risk medications and contraceptive care to identify disparities and improve outcomes.
OrganizationDuke University School of Medicine, Department of Obstetrics and Gynecology
Requestor TypeAcademic
Principal InvestigatorJonas Swartz, MD
Release TypeLimited Dataset
Approval Date2/24/2025